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Editor’s Note: A story at home

Words are one thing, photographs another. In the 25 years I’ve been in journalism, I’ve learned that though a lot of people are willing (grudgingly) to talk to reporters, and maybe even let them tag along for a few days as they go about their lives, letting a photojournalist do the same thing is a different story. Because good photos often require getting up in people’s faces.

My son has spastic quadriplegia cerebral palsy. But there’s so much more you should know about him.

My son is a constant loop in my thought track. My son is the boy you can hear from outside the house or from the other room, making sounds that seem to have no form. My son is quiet, sometimes for hours at a time. My son spends most of his time inside, in his wheelchair or on the floor, watching movies, listening to music or stories, playing with me.

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